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I kēlā me kēia makahiki ma ka 19 Iune, hoʻolauleʻa ʻia ka World Sickle Cell Day e hāpai i ka ʻike ma luna o kēia ʻano maʻi koko hoʻoilina maʻamau. Wahi a ka WHO, ma kahi o ʻelima pākēneka o ko ka honua heluna kanaka e halihali nei i ka ʻāpana cell sickle a ma kahi o 300000 mau pēpē i hānau ʻia i kēlā me kēia makahiki me kēia maʻi.
ʻO nā keiki i hānau ʻia me ka maʻi maʻi maʻi maʻi (SCD) e make koke ana no ka hiki ʻole i ko lākou kino ke hana (a i ʻole hana liʻiliʻi loa) hemoglobin olakino. ʻO ke kōkō ʻana o ke kōkō a i ʻole ke kōkō umbilical cord blood (ke koko i waiho ʻia i ka umbilical cord i ka wā o ka hānau ʻana o ke keiki) ʻo ia ke ala ʻoi loa e hiki ai i kahi ʻohana ke hoʻopaʻa i ke olakino o kā lākou keiki, inā hānau ʻia ke keiki me SCD a i ʻole me nā maʻi koko a ʻē aʻe paha. .
He aha ka maʻi maʻi sickle?
ʻO nā maʻi maʻi Sickle cell (SCD) kahi maʻi koko maʻi mau i hōʻike ʻia e kahi maʻi maʻamau ʻole ma hemoglobin, kahi protein i loaʻa i nā hunaola ʻulaʻula e lawe i ka oxygen ma loko o ke kino. ʻO ka maʻamau, he poepoe ke ʻano o ka hemoglobin akā ʻo ke kū ʻana o ka ʻenekini SC i hoʻohālikelike ʻia nā hunaola ʻulaʻula C, paʻakikī, pili, palupalu a maʻalahi hoʻi e haki.
ʻaila maikaʻi loa no ka ulu ʻana o ka lauoho
Hāpai ka hemoglobin puni i ka oxygen ma ka lawe ʻana o nā mea C i ka liʻiliʻi. ʻOiai paʻakikī a paʻa, paʻa lākou i loko o nā kīʻaha koko a hoʻopaʻa i ke ala. E ʻeha nā kino a i ʻole nā ʻaʻa i ka nele o ke koko a me ka oxygen a hoʻomaka i ka hana maʻamau a make paha.
Hoʻomaka ka hōʻailona o SCD i loko o nā mahina ʻelima o ka hānau ʻana o kahi keiki. ʻO kēia ke kumu o ka make wana o ke keiki. ʻO ka mālama ʻana iā SCD me ka transplant cell stem a i ʻole ka hoʻoneʻe iwi o ka iwi. ʻO ka iwi iwi ka iwi spongy e hana ana i nā hunaola ʻulaʻula. ʻO ke kīnā kūpuna i loko o lākou ma muli o ka ʻāpana cell sickle e hoʻohua iā lākou i nā ʻulaʻula koko ʻulaʻula. He mea nui kēia e hoʻoliʻiliʻi ai ke kaula kaula.
He aha ke panakō koko?
Loaʻa i ke koko umbilical cord nā hunaula i hiki ke hana i nā hunaola olakino maikaʻi. I ka wā o ka hāpai ʻana, hāʻawi ka umbilical cord i nā meaola i ka pēpē mai ka meaʻai a ka makuahine e ʻai ai. I ka manawa o ka hānau ʻana, ʻokiʻoki ʻia ka umbilical cord no ka mea ʻaʻole ia e pono hou i ka pēpē.
Loaʻa i ke koko i loko o ke kaula he ʻumi mau manawa o nā hunaola ma mua o nā mea i hana ʻia e ka iwi iwi. ʻO ka maʻamau, hoʻolei ʻia ia, akā inā koho kahi ʻohana no ke panakō ʻana o ke kō o ke kaula, ma hope o ka hānau ʻana, hōʻiliʻili ke kauka ma kahi o 40 ml o ke koko mai ka umbilical cord a hoʻouna iā ia i ka panakō koko no ka hoʻāʻo ʻana a me ka mālama ʻana. ʻAʻole ʻeha ka hana a koi ʻia i mau minuke wale nō.
He mea nui ke koko kaula no ka mea hiki ke mālama i nā maʻi e like me leukemia, anemia aplastic, nā maʻi maʻi maʻi maʻi a me nā maʻi ʻē aʻe a me nā maʻi pale maʻi. I ka wā e hiki mai ana, hiki iā ia ke kōkua i ke keiki a i ʻole o kekahi o kona ʻohana lālā inā ʻike ʻia lākou me nā maʻi i ʻōlelo ʻia aʻe nei. Hiki iā ʻoe ke hāʻawi i ke koko kaula inā makemake ʻoe.
Nā Kūlana O Ke Kānāwai Kālā Kālā
- E like me ka mea i ʻōlelo ʻia aʻe, kōkua ia i ka mālama ola ʻana a mālama i nā maʻi e pili ana i ka ʻōnaehana pale a me ke koko e like me SCD.
- E kiʻi ʻoe i ke koko kaula i nā manawa a pau e pono ai.
- He kōkua nui ke koko kaula no ka poʻe me ka moʻolelo ʻohana o nā maʻi genetics e like me SCD, leukemia a me nā mea ʻē aʻe.
- I kekahi manawa, ʻaʻohe kūlike ke koko kaula o ke keiki ma muli o ka hoʻololi ʻana o ke kūpuna ke ulu ʻo ia. I kēia hihia, inā loaʻa ka nui o ke koko kaula, loaʻa paha i ke koko kaula o haʻi a mālama i ko lākou ola. ʻO kēia ke kumu, paipai ʻia kēlā me kēia ʻohana no ka panakō ʻana i ke koko.
- Loaʻa ka manawa kiʻekiʻe o ke kaʻi kaula kaula i loko o kahi ʻohana, keu hoʻi i waena o nā kaikaina.
- Hiki ke hoʻohana ʻia ke koko kaula e mālama ai i nā maʻi ʻē aʻe ma kahi o nā kūlana kūlohelohe. Ke hele nei nā noiʻi he nui e ʻike i ka helu o nā maʻi hiki ke mālama. Manaʻo kekahi mau noiʻi e hiki i ke koko ke mālama i nā maʻi e like me nā maʻi o Parkinson, ka maʻi ʻaʻai umauma a me nā mea ʻē aʻe.
- ʻAʻohe mea weliweli a ʻeha paha i ke kaʻina.
Con o ke Bank Blood Bank
- ʻO ke kumukūʻai no ka mālama ʻana i ke koko kaula i nā haukapila pilikino he kumukūʻai nui. Pono ia i kahi uku mālama makahiki kiʻekiʻe. Manaʻo ʻia kēia hana ke loaʻa i ka ʻohana ka mōʻaukala o nā maʻi genetical. Hana ʻia ka hoʻopili kālā koko pilikino no ka hoʻohana pilikino i ka wā e hiki mai ana.
- I ka hui panakō lehulehu, ʻaʻole hiki i kahi ʻohana ke koho no ka mālama ʻana i ke koko kaula no kā lākou hoʻohana pilikino i ka wā e hiki mai ana. Hiki iā lākou ke koho i kahi manawaleʻa i nā haukapila lehulehu. Mālama ka haukapila i nā kuleana āpau o ke koko a hāʻawi iā ia i kekahi mea i nele. I ka hihia, pono ʻoe i ke koko i ka wā e hiki mai ana, pono ʻoe e hoʻopili aku i ka panakō koko.
- Ma mua o 20 mau makahiki, ʻaʻole ke kaola kaula i hoʻopaʻa ʻia e hōʻoia i kona pono.
- Inā pani kahi pēke kaula pilikino ma muli o kekahi mau kumu, pono i ka ʻohana e ʻimi i kahi panakō mālama ʻē aʻe.
- Pono ka mea hāʻawi a me ka mea loaʻa e hoʻokō i kekahi mau pae hoʻohālikelike no ka hāʻawi ʻana a me ka loaʻa ʻana o ke koko kaula.
- Hiki i nā panakū pilikino ke hoʻolei i ke koko mālama ʻia ke hana ʻole ʻia ka uku i ka manawa.
- I kekahi manawa, ʻoi aku ka paʻakikī o ka loaʻa ʻana o kahi haukapila e hana pū ana me nā panakoko koko kaula lehulehu.
- ʻO ka lohi i ka hōʻiliʻili ʻana i ka umbilical cord ke kumu e kahe hou ai ke koko i ke keiki.
- Aia kahi haʻahaʻa haʻahaʻa loa e hoʻohana ʻia ke koko kaula e ke keiki i ka wā e hiki mai ana. ʻO 1 ia mai 400.
Hoʻopau:
I kēlā me kēia makahiki, nui nā keiki e make ma muli o ka maʻi maʻi maʻi maʻi. No laila, e mālama iā lākou, ʻo ke koho ʻana no ka hāʻawi ʻana i ke koko kaula i nā panakō lehulehu ka mea maikaʻi loa i hiki i kekahi ke hana. Inā loaʻa iā ʻoe kahi moʻolelo ʻohana o SCD, e koho no ka mālama ʻana i nā panakō pilikino e hoʻopaʻa i ka wā e hiki mai ana o kāu keiki a me nā lālā o kou ʻohana.
lapa'au ma'i ma'i waha
